Project
Living Libraries
Living Libraries is a digital platform designed to connect patients, caregivers, and researchers, fostering collaboration in medical research. By streamlining access to research opportunities, clinical trials, and health information, the platform empowers patients to take an active role in shaping the future of healthcare.
Inspired by the growing movement of person-centered care, Living Libraries addresses the challenges of patient participation in research by offering a centralized, transparent, and accessible space. The platform ensures that users receive clear, reliable information while facilitating meaningful connections between patients and researchers.
Through features such as secure communication channels, educational content, and structured research listings, Living Libraries enhances trust and engagement in medical research. By prioritizing transparency, accessibility, and patient empowerment, the project aims to drive more inclusive and impactful healthcare innovations.
Team
Moa Berntsson
Sara Börjesson
Alessandro Lucchetti
Giulia Pantusa
Gabriele Santese
Adam Telles
Time
April to May 2024
Tools
Figma
KEY WORDS
UI
UX
User Research
Design Process
01 Secondary research
The project was initiated with exploring the area of person centric care. Moreover, a benchmarking was conducted to find inspiration on similar solutions, to discover any best practices.
02 User Research
Patients, researchers, patient coordinators, doctors, caregivers and familiy members, sponsors and communities were identified as stakeholders.
Interviews was used as a primary research method. Interviews was conducted with 3 patients with chronical conditions, 3 researchers, 2 patient coordinators, and 1 service designer.
03 Analysis
The qualitative data were complied into an KJ analysis, where similar themes were grouped to highlight problem areas.
04 Personas and scenarios
Personas and personas were created to ensure that design decisions are grounded in real user needs, behaviors, and goals.
5 personas and 2 scenarios were created.
05 Ideation
The ideation phase focused on generating ideas based on identified problems, needs and requirements. The ideation phase resulted in features such as survey-based sign up, medical information, BankID login method, chat function, filter browsing, educational sections, schedule and project description
06 Evaluation
The prototype were evaluated using Think Aloud. Two participants were asked to perform a task and to verbalize their thoughts while using the platform. The evaluation method was conducted to gather cognitive insights of the participant’s experience, and identify potential usability problems.
Result
The project resulted in a digital platform, Living Libraries, designed to connect patients and researchers, facilitating collaboration, knowledge sharing, and participation in medical research. By creating a centralized and accessible space, the platform aims to enhance patient involvement in research and innovation, ensuring that studies are conducted with, rather than just about, the individuals they impact.
Improved access to research
The platform provides patients and caregivers with reliable and structured information about ongoing research projects, clinical trials, and healthcare innovations. This enables them to make informed decisions about their participation.
Enhanced trust and transparency
Insights from stakeholder interviews highlighted the importance of trust in patient-researcher relationships. The platform integrates clear guidelines, transparent communication, and educational resources to build confidence in the research process.
Educational support for participants
To empower patients, the platform includes educational content on research methodologies, healthcare innovations, and their rights as participants. This ensures that users understand the significance of their involvement and how they can contribute to shaping future healthcare solutions.
Scalability and regional expansion
Unlike existing regional Lived Libraries, this platform is designed for broader accessibility, supporting patient involvement across different geographic locations.